Welcome to International Dementia & Culture Collaborative

What is the IDCC?

Globally 46.8 million people are estimated to be living with dementia, this is expected to double in the next 20 years. Recent figures suggest a new diagnosis of dementia occurs every 3 seconds. 

Dementia is a term used to describe a syndrome which is caused by diseases of the brain, which impact on memory, reasoning, communication and ability to carry out activities of daily living. This occurs alongside the development of behavioural and psychological symptoms. 

Culturally specific communication, integration and person-centred care for people with dementia is essential in supporting their human rights and citizenship.  There is a need for a rights-based approach of understanding culturally sensitive dementia care and support to prevent social exclusion and discrimination in socio-cultural policies and practices. 

Cultural beliefs have a direct influence on how health, illness and the ill person is interpreted. However, there is currently a lack of understanding of the impact of the culturally diverse health and social care dementia workforce on the provision of culturally sensitive care for people with dementia. 

Explore more about us...


IDCC aims to explore and develop culturally sensitive care and support for people living with dementia to support their human rights and citizenship, and to understand how health and social care professionals’ culturally driven perceptions of the biological, psychological and social aspects of dementia impact on their provision of culturally sensitive care. 


The objectives of the IDCC include:

- The development of a global understanding of the impact of dementia for people with a diagnosi, their friends and families, and health and social care professionals from the perspective of culture

- The exploration of the differences between and within cultures around the world and how this has an impact on people living with dementia, their friends and families

Dr Joanne Brooke

Director of IDCC

Dr Joanne Brooke is an Adult Nurse and Health Psychologist, who is currently working as Reader in Complex Older Persons Care with Oxford Institute of Nursing, Midwifery and Allied Health Research at Oxford Brookes University (OxINMAHR)

Joanne's research interests  include stroke, dementia and the understanding of supporting student nurses to develop evidence-based practice, and closing the theory practice gap. With regards to dementia Joanne's work has focused on improving care for people with dementia in an acute hospital setting, and building a competent, skilled and passionate workforce, including a focus on delirium superimposed on dementia. Joanne has also focused on the identification of delirium in people with dementia living in the community, and up-skilling of nurses to complete cognitive screening.

Joanne was a Senior Lecturer for four and a half years at the University of Greenwich. During this time she developed and implemented a number of dementia accredited courses at various levels, for undergraduate and postgraduate nurses. From this work, Joanne began to consider the impact of culture on nurses understanding dementia and how this may impact on their provision of person-centred care.

This questioning and need for further understanding of these topics grew into the conception of the first two studies of the International Dementia and Culture Collaborative: The intersect of culture un the understanding and development of person-centred dementia care amongst adult nursing and paramedic science students.

Current Projects

Impact of dementia in prison

How are prisoners with dementia identified, assessed, diagnosed, supported and cared for in the prison setting.

Follow the up date of this project and further research exploring the impact of dementia in prison via #PrisDemResearch

Impact of culture on dementia care


The intersect of culture in the understanding and development of person-centred dementia care amongst adult nursing students.

Impact of culture and second bereavement

Developing an understanding of second bereavement of family members from diverse cultural backgrounds.

History of Prisons

Old Melbourne Jail (just one of many visited)

The history of custodial institutions provides an insight into the development of modern prisons, from punishment to reform.

Visiting prison museums

Prisons museums throughout Western countries provide an insight in to similar roots, conditions and concerns of poor treatment of prisoners.

A growing prison population: aging prisoners

Custodial institutions need to develop beyond reforms to support an aging prison population. This brings complex issues for custodial, health and social care services.

28th Alzheimer's Europe Conference

Making dementia a European priority

Barcelona, Spain

29th - 31st October, 2018


Daily updates will be posted here, just click below...

Human Rights for people with dementia

 A powerful session on Human Rights and the need for the involvement of people with dementia in all aspects regarding dementia – from diagnosis to care to treatment to research. 

Helen Rochford-Brennan

On dementia specific villages– we do not discuss gathering up all of those with diabetes and putting them in one village. But society is happy to do this for people with dementia. This is not acceptable.

The Collaborative

Further Information


The world of conferences is vast, but the knowledge and information gained at them can help drive so many projects forward. Check out where we have been and what we have found...

Resource Reviews

We have reviewed a variety of books, papers and other resources to give you a one stop shop of what information is out there and what we think about it


Find common asked questions about the IDCC and our current projects


Follow and read our thought processes...

Contact Us

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