International Dementia & Culture Collaborative

Resource Reviews


International Handbook of Positive Aging

Globally there is an aging population; however the experience of aging varies largely across and between populations. This book covers a large range of topics relevant to an aging population and is an important read for specialists in their fields such as diabetes, dementia, cancer, older person care, as well as healthcare professionals working across specialities that include older people. The chapters are written from an evidence-based perspective to support the readers understanding of the current national and international perspectives across a wide range of topics related to aging. Within this book the concept of positive aging is explored alongside positive dying, with chapters focusing on the body over the life course, such as: cardiovascular disease, dementia, diabetes and falls, followed by chapters focusing on well-being such as: physical activity, healthy eating, sexual health, cognitive aging, environmental factors, social engagement, and technologies.  

Edited by Rachael Elizabeth Docking and Jennifer Stock  

Routledge Taylor and Francis Group 

ISBN 978 1 138 93305 7   


What the hell happened to my brain? Living Beyond Dementia

Kate Swaffer was diagnosed with younger onset dementia when she was 49 years old, and is now an advocate and activist for dementia, an international speaker, Co-founder and Co-chair of Dementia Alliance International, alongside many other prominent positions. Within this book Kate explores her experiences and challenges misconceptions, such as her conceptualisation of ‘Prescribed Disengagement’ TM and her evolving ‘disAbilities’ from her diagnosis, disAbilities that are similar to other conditions and need support and interventions when they occur. Kate is unique in that she has a Master’s degree in dementia care and is diagnosed with dementia, and consequently incredibly well informed. No subject is taboo and written with such pose. This book is a powerful informative read that should be read by all health and social care professionals, but equally supportive for people how have dementia in their lives.   

You can follow Kate Swaffer on twitter @KateSwaffer  

Kate Swaffer 

Jessica Kingsley Publishers 

ISBN 978 1 84905 608 1  



The Lewy Body Soldier

This book describes the experiences, thoughts and work of Norman McNamara who has been diagnosed with Lewy bodies dementia (LBD). Norrms is passionate about fighting against his condition, but also the development of a support network for everyone with LBD and their families, which he has developed at both a local level in Devon and globally around the world. Norrms is the creator of both the Purple Angels and World Rocks Against Dementia, which in 2017 included 76 concerts in 12 countries. Norrms determination to create supportive networks whilst experiencing vivid audio and visual hallucinations, night and day terrors is truly inspirational. This book is a powerful read, which provides an insight into Norrms experience of living with LBD and some of the struggles faced by himself and his partner Elaine. I would suggest this is an essential read for all health and social care professionals.   

You can follow Norrms on twitter @NormanMcNamara   

Norman McNamara 


ISBN 978 1 536805 871  


Dementia, Culture and Ethnicity: issues for all

This book explores the impact and issues of culture and ethnicity on the experience of dementia, support and services. The majority of countries around the world have populations from diverse backgrounds, these populations are now aging. This book explores how dementia services need to develop to ensure culturally appropriate care is provided to a culturally diverse population. Topics include engaging and working with people with dementia and their families from different communities, such as South Asian as well as Black and Minority Ethnic Groups, alongside cultural competence in research and care homes. A powerful element of this book is the inclusion of the perspectives of families with personal experiences of ethnicity and dementia. This is an important book for health and social care professionals, with an open and informed discussion on the impact of culture and ethnicity on the experience of dementia.   

Edited by Julia Botsford and Karen Harrison Dening 

Jessica Kingsley Publishers 

ISBN 978 1 849054 867  


The Dementia Diaries: a novel in cartons

This book is published by SILK the Social and Innovation Lab for Kent; however is the product of co-production of the SILK team and young people. The thoughts and experiences of four young people are presented in the form of a diary or as Sam states a ‘notebook’ as a diary is for girls. The diaries and notebooks explore how these young people (9-14 years) came to terms with the impact of dementia on one of their family members. The stories recounted cover the full spectrum from good days to bad days, with an overwhelming sense of honesty and practical ways of coping. The diaries include the laughter and tears of these young people. The support of young people to understand dementia is imperative to remove the stigma attached to this disease. This book if introduced into schools is one way to influence and educate the next generation about dementia.   

Matthew Snyman 

SILK Publishing 

ISBN 978 0 957 6600 0 7