What is the IDCC?
Globally 46.8 million people are estimated to be living with dementia, this is expected to double in the next 20 years. Recent figures suggest a new diagnosis of dementia occurs every 3 seconds.
Dementia is a term used to describe a syndrome which is caused by diseases of the brain, which impact on memory, reasoning, communication and ability to carry out activities of daily living. This occurs alongside the development of behavioural and psychological symptoms.
Culturally specific communication, integration and person-centred care for people with dementia is essential in supporting their human rights and citizenship. There is a need for a rights-based approach of understanding culturally sensitive dementia care and support to prevent social exclusion and discrimination in socio-cultural policies and practices.
Cultural beliefs have a direct influence on how health, illness and the ill person is interpreted. However, there is currently a lack of understanding of the impact of the culturally diverse health and social care dementia workforce on the provision of culturally sensitive care for people with dementia.
Explore more about us...
Aims
IDCC aims to explore and develop culturally sensitive care and support for people living with dementia to support their human rights and citizenship, and to understand how health and social care professionals’ culturally driven perceptions of the biological, psychological and social aspects of dementia impact on their provision of culturally sensitive care.
Objectves
The objectives of the IDCC include:
- The development of a global understanding of the impact of dementia for people with a diagnosi, their friends and families, and health and social care professionals from the perspective of culture
- The exploration of the differences between and within cultures around the world and how this has an impact on people living with dementia, their friends and families
Dr Joanne Brooke
Director of IDCC
Dr Joanne Brooke is an Adult Nurse and Health Psychologist, and currently Professor of Nursing, and Director of the Centre of Social Care, Health and Related Research at Birmingham City University.
Joanne's research interests include stroke, dementia and the understanding of supporting student nurses to develop evidence-based practice, and closing the theory practice gap.
Joanne's work regarding dementia has focused on improving care for people with dementia in acute hospital, community and prison settings, and building a competent, skilled and passionate workforce,
Joanne has also focused on the identification of delirium in people with dementia living in the community and on admission to an acute hospital, and up-skilling of nurses working in both environments to identify, support and care for patients with delirium superimposed on dementia.
Joanne was a Senior Lecturer for four and a half years at the University of Greenwich. During this time she developed and implemented a number of dementia accredited courses at various levels, for undergraduate and postgraduate nurses. From this work, Joanne began to consider the impact of culture on nurses understanding dementia and how this may impact on their provision of person-centred care.
This questioning and need for further understanding of these topics grew into the conception of the first two studies of the International Dementia and Culture Collaborative: The intersect of culture un the understanding and development of person-centred dementia care amongst adult nursing and paramedic science students.
Churchill Fellowship (completed in 2018, awarded in 2024)
The Churchill Memorial Trust supported Professor Joanne Brooke to explore the support and care of people in prison from diverse cultural backgrounds with cognitive impairment or dementia. The Fellowship enabled travel to New Zealand, Australia, and United State of America.
The learning and recommendations from this Fellowship include the need to develop:
- Culturally appropriate services to support prisoners with dementia
- Appropriate cognitive screening tools for culturally diverse prison populations
- Nurse led initiatives to identify, and screen prisoners at a high risk of developing dementia to support an early diagnosis, treatment and interventions
- Dementia education for prison staff, health and social care professionals and prisoners
- A robust approach to support prisoners with dementia who require physical and social care.
Lastly, there remains a need to understand the human rights of people in prison with dementia, currently people living with dementia living in the community report having their human rights violated; therefore this complex issue needs to be understood within the prison setting.
Empowered Conversation (Age UK, Salford)
In conversation with ...
Professor Joanne Brooke discusses dementia within prison with Emma Smith from Age UK, Salford and their empowered conversation programme. An informal chat exploring the topic of supporting people with dementia in prison, including a focus on both current care and support and how to develop more appropriate care and support.
Please follow the below link to view the conversation:
(3) In Conversation with ... Professor Jo Brookes (Dementia in Prisons) - YouTube
Current Projects
Impact of dementia in prison
How are people in prison with dementia identified, assessed, diagnosed, supported and cared for in the prison setting.
Follow the up date of this project and further research exploring the impact of dementia in prison via #PrisDemResearch
BOOK REVIEW: Dementia in Prison: An Ethical Framework to Support Research, Practice and Prisoners
This innovative volume exposes dementia as a condition that the aging prison population is increasingly facing, and argues that healthcare professionals and prison staff must ensure that prisoners with dementia during their sentence are identified and supported.
Dementia in Prison covers three key areas:
• Healthcare services in prison settings and how these affect the rapidly aging prison population,
• The human rights of prisoners with dementia, alongside the ethics of healthcare in this environment,
• The current state of support for prisoners with dementia and any recommendations for future assessment, diagnosis, and policies.
This provocative book will be invaluable to scholars in the fields of public health, criminology and medical sociology as well as nurses and prison staff.
Experiences of Transgender Women in Prison
Recently published systematic literature review
The Experience of Transgender Women Prisoners Serving a Sentence in a Male
Prison: A Systematic Review and Meta-Synthesis
Abstract
Due to social exclusion and direct and indirect discrimination, there is a
disproportionate representation of transgender individuals in prison. The
aim of this article is to report the findings of a systematic review and
meta-thematic synthesis to understand the experience of transgender
women who have served a sentence in a male prison. The review identified
14 papers, and the thematic synthesis identified five themes. The themes
are discussed within a contemporary socio-ecological model, developed
by White Hughto and colleagues to support transgender healthcare in prison,
and to explore if this model is applicable for the wider prison
environment.
An open access article:
Brooke, J. M., Biernat, K., Shamaris, N., & Skerrett, V. (2022). The Experience of Transgender Women Prisoners Serving a Sentence in a Male Prison: A Systematic Review and Meta-Synthesis. The Prison Journal, 102(5), 542–564. https://doi.org/10.1177/00328855221121097
Any questions email:
History of Prisons
Old Melbourne Jail (just one of many visited)
The history of custodial institutions provides an insight into the development of modern prisons, from punishment to reform.
Visiting prison museums
Prisons museums throughout Western countries provide an insight in to similar roots, conditions and concerns of poor treatment of prisoners.
A growing prison population: aging prisoners
Custodial institutions need to develop beyond reforms to support an aging prison population. This brings complex issues for custodial, health and social care services.
Further prisons of interest
HM Prison Shepton Mallet
The prison was closed in March 2013., and opened in 2018 for tours. No changes have been made to the building or its contents, so this is a really interesting tour for the those interested in understanding the conditions of a recent prison. Although, plans are in place to convert this prison into apartments.
Oxford Prison - now a 5* hotel!
A prison with a 5* hotel experience, well worth a visit, for either a drink, dinner or an overnight stay in a cell with luxury amenities.
Hopefully in September 2020 also the venue for a book launch:
Dementia in Prison: An ethical framework to support research, practice and prisoners.
Human Rights for people with dementia
A powerful session on Human Rights and the need for the involvement of people with dementia in all aspects regarding dementia – from diagnosis to care to treatment to research.
Helen Rochford-Brennan
On dementia specific villages– we do not discuss gathering up all of those with diabetes and putting them in one village. But society is happy to do this for people with dementia. This is not acceptable.
Publications from our work
2024
Jarret, M., Dyson, J., Skinner, J., Brooke, J.M. (2023). The role and impact of the prison chaplain: A systematic review and narrative synthesis. Journal of Pastoral Care & Counseling (in press).
Brooke, J.M., Rybacka, M., Sarwan, S., Omo, O. (2024). An exploration of nursing students lived experience of a clinical placement in prison: A phenomenological study. Journal of Advanced Nursing, DOI: 10.1111/jan.16355.
Jackson, D., Aveyard, H., Brooke, J., Commodore-Mensah, Y., Noyes, J., Sharps, P., Smith, G.D., Timmins, F., Yu, D. (2024). International Nurses Day 2024: The economic power of care. Journal of Advanced Nursing, 80(6): 2153-2155.
Brooke, J.M., Allsop, F., Richards, L., Ojo, O. (2024). The development, delivery, content and impact of nutrition education in prisons: a systematic review. Journal of Correctional Health Care (in press)
2023
Wilding, E., Bartl, S., Littlemore, J., Clark, M., Brooke., J.M. (2021). Negotiating agency and control: A metaphor analysis of older adults lived experience of household isolation during Covid-19. Frontiers in Communication, DOI: 10l3389/fcomm.2022.1015562.
https://www.frontiersin.org/articles/10.3389/fcomm.2022.1015562/full
2022
Brooke, J., Dunford, S., Clark, M. (2021). Longitudinal impact of household isolation, social distancing and shielding on older adults during the COVID-19 pandemic. International Journal of Nursing Older People, 17(5):e12459.
https://onlinelibrary.wiley.com/doi/10.1111/opn.12459
Ojo, O., Ojo, O.O., Wang, X-H., Boateng, J., Feng, Q., Brooke, J., Adegboye, A.R.A. (2022). The Effects of Enteral Nutrition in Patients with COVID-19: A systematic Review and Meta-analysis. Nutrients, 14(5):1120.
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8912272/
Dunford, S., Brooke, J. (2022). Longitudinal impact of household isolation and social distancing on older people in the Republic of Ireland during the COVID-19 pandemic. Nursing Older People, DOI: 10.7748/nop.2022.e1400.
Brooke, J., Rybacka, M., Ojo, O. (2022). Nursing student’s lived experience of a clinical placement in prison healthcare: A systematic review. Nursing Education in Practice, 65, 103463.
Brooke, J., Dunford, S. (2022). Older people's experience of COVID-19 restrictions on vaccine hesitancy: A longitudinal phenomenological study to support nurse-patient vaccination conversations. Journal of Advanced Nursing, 78(12): 4177-4189.
2020
Brooke, J., Clark, M. (2020). Older people’s early experience of household isolation and social distancing during COVID-19. Journal of Clinical Nursing DOI: 10.1111/jocn.15485.
https://onlinelibrary.wiley.com/doi/full/10.1111/jocn.15485?af=R
Brooke, J., Rybacka, M. (2020). Exploration of older prisoner’s social needs, who attended one of two prison initiatives for older people: an inductive phenomenological study. International Journal of Prisoners Health, DOI: 10.1108/IJPH-03-2020-0016.
https://www.emerald.com/insight/content/doi/10.1108/IJPH-03-2020-0016/full/html
Wang, N., Brooke, J. (2020). The experience of children with parents diagnosed with young onset dementia: A systematic literature review. British Journal of Neuroscience Nursing DOI: 10.12968/bjnn.2020.16.4.165.
https://www.magonlinelibrary.com/doi/abs/10.12968/bjnn.2020.16.4.165
Brooke, J., Jackson, D. (2020). Older people and COVID-19: Isolation, risk and ageism. Journal of Clinical Nursing 29(13-14): 2044-2046.
https://onlinelibrary.wiley.com/doi/10.1111/jocn.15274
2019
Brooke, J.M., Ojo, O. (2019). Contemporary views on dementia as witchcraft in sub-Saharan Africa: a systematic literature review. Journal of Clinical Nursing DOI: 10.1111/jocn.15066.
Brooke, J.M., Jackson, D. (2019). An exploration of the support provided by prison staff, education, health and social care professionals, and prisoners for men with dementia in prison: A phenomenological study. Journal of Forensic Psychiatry and Psychology 30(5): 807-823.
Brooke, J. (2019). Equity of people with dementia in research, why does this issue remain? Journal of Clinical Nursing DOI: 10.1111/jocn.14957.
Cronin, C., Brooke, J. (2019). Relation to Older People Evaluation (ROPE) a measure of ageism: A systematic review. Journal of Older Person Nursing 31(3): 29-38.
Brooke, J.M., Rybacka, M. (2019). Development of a dementia education workshop for prison staff, prisoners, health and social care professionals. Journal of Correctional Health Care (accepted and in press).
Ojo, O., Brooke, J., Cronin, C. (2019). The development and evaluation of an analytical framework to explore student nurses’ cultural beliefs of dementia. Journal of Nursing Research DOI: 10.1097/jnr.0000000000000343.
Brooke, J., Cronin, C., Stiell, M., Ojo, O., Belcina Jr., M.T., Smajlović, S.K., Slark, J. (2019). Nursing students’ cultural beliefs and understanding of dementia: A phenomenological study across three continents. Nursing Education Today 77: 6-11.
2018
Brooke, J., Diaz-Gil, A, Jackson, D. (2018). The impact of dementia in the prison setting: A systematic review. Dementia: the international journal of social research and practice DOI: 10.1177/1471301218801715.
Brooke, J.M., Stiell, M. (2018). Paramedic science students’ willingness, interest, likelihood and intentions to work with people with dementia. Journal of Dementia Care 26(3): 28-29.
2017
Brooke, J.M., Stiell, M. (2017). Paramedic students' beliefs, experiences, and development of clinical and interpersonal skills to support people living with dementia. Journal of Paramedic Practice 9(8): 348-353.
Brooke, J.M., Cronin, C., Steill, M., Ojo, O. (2017) The intersection of culture in the provision of dementia care: A systematic review. Journal of Clinical Nursing DOI: 10.1111/jocn.13999.
Brooke, J.M., Ojo, O. (2017) Elements of a sustainable, competent and empathetic workforce to support patients with dementia during an acute hospital stay: A comprehensive literature review. The International Journal of Health Planning and Management 1–16.
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Further Information
Conferences
Resource Reviews
Resource Reviews
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Resource Reviews
Resource Reviews
Resource Reviews
We have reviewed a variety of books, papers and other resources to give you a one stop shop of what information is out there and what we think about it
FAQs
Resource Reviews
FAQs
Find common asked questions about the IDCC and our current projects